Monty Hui, un niño de ocho años de Australia, y su familia han hablado con SBS News sobre vivir con una enfermedad rara y los obstáculos que enfrentan en el…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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