Como se informó en Biospace, la Organización Nacional de Enfermedades Raras (NORD) acaba de abrir el registro para que los pacientes participen en un estudio de historia natural sobre la…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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