La Cumbre Global de Defensa de Pacientes Raros de Genes 2019 se llenó de presentaciones increíbles que destacaron los pasos para el progreso en la investigación y la organización de…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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