El Reino Unido ha comenzado recientemente la práctica del nuevo Marco de Enfermedades Raras del Reino Unido, un esfuerzo del gobierno que tiene como objetivo difundir la conciencia, acelerar el…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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