This event has passed.

Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group

Name: Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group
Start: 2023-11-01T20:00:00-04:00
End: 2023-11-01T21:00:00-04:00

November 1, 2023 @ 8:00 pm - 9:00 pm

Adults with CF Who Received a Late Diagnosis Online Support Group

November 1, 2023 at 8 PM

Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD.

To sign up and learn more, click here.

+ Google Calendar + Add to iCalendar

Details

Date:: November 1, 2023
Time:: 8:00 pm - 9:00 pm
Event Category:: Cystic Fibrosis
Event Tags:: CF, Cystic Fibrosis, Event
Website:: https://tinyurl.com/ycyemtk7

Organizer

: Cystic Fibrosis Research Institute
Phone:: 650.665.7576
Email:: cfri@cfri.org
Website:: cfri.org

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group

November 1, 2023 @ 8:00 pm - 9:00 pm

Adults with CF Who Received a Late Diagnosis Online Support Group

To sign up and learn more, click here.

Details

Organizer

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

Let’s Work Together!

Keep Up to Date

Learn More