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The Cystinosis Research Foundation’s Day of Hope Family Conference

April 19, 2018 - April 21, 2018

Presenting the CRF 2018 Day of Hope Family Conference

The event will be an opportunity for cystinosis patients and their families to share their experiences with one another and build community. This will also be an opportunity to learn about the latest news in research and treatment. Families can also learn about day to day disease management and how to cope with specific symptoms.

 

Attendance for the conference is free.

Hotel room rate for cystinosis patients/families: $195/night

$225/night plus tax and gratuity for other guests.

There is also a Family Assistance Fund available to help cover the associated costs of attendance for families that are in need.

Details

Start:
April 19, 2018
End:
April 21, 2018
Event Categories:
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Event Tags:
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Website:
https://www.cystinosisresearch.org/crf-2018-day-hope-family-conference/

Organizer

Cystinosis Research Foundation
Phone:
949-223-7610
Website:
https://www.cystinosisresearch.org/2017-crf-day-hope-family-conference/

Venue

Fashion Island Hotel
690 Newport Center Dr.
Newport Beach, CA United States
+ Google Map
Phone:
949-759-0808
Website:
https://goo.gl/gpbVhm
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
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