Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
MASH Rec CARD (13)
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Lysosomal Disease Network 4TH Annual Million Dollar Bike Ride

  1. Home>
  2. Events>
  3. Lysosomal Disease Network 4TH Annual Million Dollar Bike Ride
Loading Events

« All Events

  • This event has passed.

Lysosomal Disease Network 4TH Annual Million Dollar Bike Ride

May 20, 2017 @ 7:30 am - 4:00 pm

  • « Fabry International Network’s 5th Fabry Expert Meeting
  • The Tyrosinemia Type I: Making Connections Count Meeting »

For more information, click here, call 215-573-6822, or e-mail Million Dollar Ride.

+ Google Calendar+ Add to iCalendar

Details

Date:
May 20, 2017
Time:
7:30 am - 4:00 pm
Event Categories:
Cystinosis, Fabry Disease, Gaucher Diseases, Rare Disease
Event Tags:
Event, Lysosomal Disease Network, rare disease
Website:
http://www.lysosomaldiseasenetwork.org/calendar-of-events/

Organizer

Lysosomal Disease Network
Email:
info@lysosomaldiseasenetwork.org
Website:
http://www.lysosomaldiseasenetwork.org

Venue

Highline Park
3160 Chestnut Street
Philadelphia, PA United States
+ Google Map
  • « Fabry International Network’s 5th Fabry Expert Meeting
  • The Tyrosinemia Type I: Making Connections Count Meeting »
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info