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November 2017
North American Cystic Fibrosis Conference: Register Here Now!
Come to the 31st Annual NACFC and be among 5,000 attendees, exhibitors, supporters, and staff from around the globe to learn more and talk about everything cystic fibrosis! Find out your registration fees at this link!
Find out more »October 2018
The Cystic Fibrosis Foundation’s North American Cystic Fibrosis Conference
32nd Annual North American Cystic Fibrosis Conference (NACFC) NACFC will bring together people from across the medical field who have faced the challenge of treating cystic fibrosis firsthand. Attendees will learn the latest research and treatment info on cystic fibrosis. This event is open to therapists, scientists, researchers, caregivers, and industry representatives. Stay tuned at the conference website for future updates on logistics such as lodging and registration.
Find out more »August 2020
Cystic Fibrosis Research Inc.’s 33rd Annual National CF Education Conference
CFRI Presents: The 33rd Annual National CF Education Conference: Partners in Progress ~ An Exciting Virtual Experience In light of the ongoing coronavirus/COVID-19 pandemic, CFRI's annual education conference will be held in a virtual, online format. The event will feature presentations of research studies funded by the CFRI as well as a wide variety of presentations on critical subjects relevant to the cystic fibrosis rare patient community. Click here for more information. Registration for this event is FREE. Click here…
Find out more »February 2021
Cystic Fibrosis Research, Inc.’s Online Support Group for Adults with Cystic Fibrosis
Online Support Group for Adults with Cystic Fibrosis February 15, 2021 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF. The group meets on the third Monday of every month, from 6-7:30 pm (9-10:30 pm EST). To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register. …
Find out more »Cystic Fibrosis Research, Inc.’s California Rare Disease Advisory Council Virtual Coalition Meeting
California Rare Disease Advisory Council Virtual Coalition Meeting February 17, 2021 Legislation to create a California Rare Disease Advisory Council (RDAC) will be introduced by State Senator Susan Eggman in mid-February. If you would like to review the proposed bill language, please email Stacie Reveles at [email protected]. Our next coalition meeting will take place in conjunction with California’s Rare Action Network Rare Disease Day Virtual Event. Click here to sign up and learn more.
Find out more »March 2021
Cystic Fibrosis Research, Inc.’s Online Support Group for Adults with Cystic Fibrosis
Online Support Group for Adults with Cystic Fibrosis March 15, 2021 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF. The group meets on the third Monday of every month, from 6-7:30 pm (9-10:30 pm EST). To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register. …
Find out more »Cystic Fibrosis Research, Inc.’s Online Support Group for Cystic Fibrosis Caregivers
Online Support Group for Cystic Fibrosis Caregivers March 16, 2021 CFRI provides a monthly CF Caregivers Online Support Group, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing caregivers working with CF patients. The group meets on the third Tuesday of every month: One session is held for parents of CF patients, from 5-6 pm PT; and another is for partners/spouses/parents of adult patients, which is held from 7-8 pm…
Find out more »Cystic Fibrosis Research, Inc.’s Virtual CF Winter-to-Spring Mini Retreat
Virtual CF Winter-to-Spring Mini Retreat March 19-21, 2021 This event will take place fully online and will feature daily exercises, arts and crafts, support group sessions, and education presentations from special guests and CF experts. New participants are encouraged to attend. Registration is required and limited to 100 participants. For any questions, please email [email protected]. Click here to register.
Find out more »April 2021
Cystic Fibrosis Research, Inc.’s Online Support Group for Adults with Cystic Fibrosis
Online Support Group for Adults with Cystic Fibrosis April 19, 2021 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF. The group meets on the third Monday of every month, from 6-7:30 pm (9-10:30 pm EST). To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register. …
Find out more »Cystic Fibrosis Research, Inc.’s Online Support Group for Cystic Fibrosis Caregivers
Online Support Group for Cystic Fibrosis Caregivers April 20, 2021 CFRI provides a monthly CF Caregivers Online Support Group, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing caregivers working with CF patients. The group meets on the third Tuesday of every month: One session is held for parents of CF patients, from 5-6 pm PT; and another is for partners/spouses/parents of adult patients, which is held from 7-8 pm…
Find out more »May 2021
Cystic Fibrosis Research, Inc.’s Online Support Group for Adults with Cystic Fibrosis
Online Support Group for Adults with Cystic Fibrosis May 17, 2021 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF. The group meets on the third Monday of every month, from 6-7:30 pm (9-10:30 pm EST). To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register. …
Find out more »Cystic Fibrosis Research, Inc.’s Online Support Group for Cystic Fibrosis Caregivers
Online Support Group for Cystic Fibrosis Caregivers May 18, 2021 CFRI provides a monthly CF Caregivers Online Support Group, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing caregivers working with CF patients. The group meets on the third Tuesday of every month: One session is held for parents of CF patients, from 5-6 pm PT; and another is for partners/spouses/parents of adult patients, which is held from 7-8 pm…
Find out more »July 2022
Cystic Fibrosis Research Institute’s Navigating Grief to Growth: Bereavement Support Group
Navigating Grief to Growth: Bereavement Support Group July 5th, 2022 A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also…
Find out more »Cystic Fibrosis Research Institute’s Virtual Support Group for the Spanish-Speaking CF Community
Virtual Support Group for the Spanish-Speaking CF Community July 13th, 2022 This monthly group meets on the second Wednesday of every month and addresses the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW. For more information and to register, click here.
Find out more »Cystic Fibrosis Research Institute’s Online Support Group for Adults with CF
Online Support Group for Adults with CF July 18th, 2022 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF. The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST). To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the…
Find out more »Cystic Fibrosis Research Institute’s CF Caregivers Support Groups
CF Caregivers Support Groups July 19, 2022 CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone. Two groups to choose from: Parents of children with CF: 5:00 pm – 6:00 pm PST Parents/Spouses/Partners of Adults with CF: 6:00 pm – 7:00 pm PST To…
Find out more »Cystic Fibrosis Research Institute’s Navigating Grief to Growth: Bereavement Support Group
Navigating Grief to Growth: Bereavement Support Group July 19th, 2022 A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also…
Find out more »Cystic Fibrosis Research Institute’s Post-Transplant Support Group for Adults with CF
Post-Transplant Support Group for Adults with CF July 27, 2022 This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient. To register, click here. You will only have to register once to attend any meeting.
Find out more »Cystic Fibrosis Research Institute’s Online Support Group for Teens with CF
Online Support Group for Teens with CF July 20th, 2022 This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center. Parents must provide consent for their teenagers to attend. For more information and to register, click here.
Find out more »Cystic Fibrosis Research Institute’s 35th Virtual National CF Education Conference
CFRI's 35th Virtual National CF Education Conference: Focus on the Future July 29-31, 2022 CFRI’s National CF Education Conference brings together the national and international cystic fibrosis community for a virtual weekend of content and connection. Nationally-renowned presenters will address subjects that are vital to the CF community. Hear from CFRI-funded researchers on innovative CF research, visit pharmaceutical & medical technology exhibits, and attend support groups and workshops. Socialize with members of the global CF community and honor CF heroes at…
Find out more »July 2023
Cystic Fibrosis Research Institute’s 36th Hybrid National CF Education Conference
CFRI's 35th Virtual National CF Education Conference: Focus on the Future July 28-30, 2023 CFRI’s National CF Education Conference will be held in-person and virtually. The Conference kicks off Friday, July 28, with an all-day Research Track, and opening reception. Speakers on Saturday and Sunday will present on topics including phage therapy, stem cell research, mRNA therapy, and parenting with CF. Exhibitors, the annual awards dinner and dance party make this a full weekend of community connection. Virtual attendees can…
Find out more »September 2023
Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group
Adults with CF Who Received a Late Diagnosis Online Support Group September 6, 2023 at 8 PM Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.
Find out more »October 2023
Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group
Adults with CF Who Received a Late Diagnosis Online Support Group October 4, 2023 at 8 PM Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.
Find out more »November 2023
Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group
Adults with CF Who Received a Late Diagnosis Online Support Group November 1, 2023 at 8 PM Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.
Find out more »December 2023
Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group
Adults with CF Who Received a Late Diagnosis Online Support Group December 6, 2023 at 8 PM Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.
Find out more »
