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May 2017

Cystic Fibrosis Research Inc. Embrace Retreat

May 5, 2017 - May 7, 2017
Vallombrosa Center Menlo Park, CA United States + Google Map
$150
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July 2017

Cystic Fibrosis Research Inc.’s 30th National CF Family Education Conference

July 28, 2017 - July 30, 2017
Pullman San Francisco Bay, 223 Twin Dolphin Drive
Redwood City, CA United States
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November 2017

North American Cystic Fibrosis Conference: Register Here Now!

November 2, 2017 @ 8:00 am - November 4, 2017 @ 5:00 pm
Indiana Convention Center, 100 S. Capitol Avenue
Indianapolis, IN 46225 United States
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Come to the 31st Annual NACFC and be among 5,000 attendees, exhibitors, supporters, and staff from around the globe to learn more and talk about everything cystic fibrosis! Find out your registration fees at this link!

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October 2018

The Cystic Fibrosis Foundation’s North American Cystic Fibrosis Conference

October 18, 2018 - October 20, 2018
Colorado Convention Center, 700 14th Street
Denver, VA United States
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32nd Annual North American Cystic Fibrosis Conference (NACFC)   NACFC will bring together people from across the medical field who have faced the challenge of treating cystic fibrosis firsthand. Attendees will learn the latest research and treatment info on cystic fibrosis. This event is open to therapists, scientists, researchers, caregivers, and industry representatives. Stay tuned at the conference website for future updates on logistics such as lodging and registration.

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August 2020

Cystic Fibrosis Research Inc.’s 33rd Annual National CF Education Conference

August 1, 2020 - August 2, 2020

CFRI Presents: The 33rd Annual National CF Education Conference: Partners in Progress ~ An Exciting Virtual Experience In light of the ongoing coronavirus/COVID-19 pandemic, CFRI's annual education conference will be held in a virtual, online format. The event will feature presentations of research studies funded by the CFRI as well as a wide variety of presentations on critical subjects relevant to the cystic fibrosis rare patient community. Click here for more information. Registration for this event is FREE. Click here…

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February 2021

Cystic Fibrosis Research, Inc.’s Online Support Group for Adults with Cystic Fibrosis

February 15 @ 6:00 pm - 7:30 pm

Online Support Group for Adults with Cystic Fibrosis February 15, 2021 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.  The group meets on the third Monday of every month, from 6-7:30 pm (9-10:30 pm EST).  To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register. …

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Cystic Fibrosis Research, Inc.’s California Rare Disease Advisory Council Virtual Coalition Meeting

February 17 @ 1:00 pm - 2:30 pm

California Rare Disease Advisory Council Virtual Coalition Meeting February 17, 2021 Legislation to create a California Rare Disease Advisory Council (RDAC) will be introduced by State Senator Susan Eggman in mid-February.  If you would like to review the proposed bill language, please email Stacie Reveles at sreveles@cfri.org.  Our next coalition meeting will take place in conjunction with California’s Rare Action Network Rare Disease Day Virtual Event. Click here to sign up and learn more.

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March 2021

Cystic Fibrosis Research, Inc.’s Online Support Group for Adults with Cystic Fibrosis

March 15 @ 6:00 pm - 7:30 pm

Online Support Group for Adults with Cystic Fibrosis March 15, 2021 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF. The group meets on the third Monday of every month, from 6-7:30 pm (9-10:30 pm EST). To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register. …

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Cystic Fibrosis Research, Inc.’s Online Support Group for Cystic Fibrosis Caregivers

March 16 @ 5:00 pm - 6:00 pm

Online Support Group for Cystic Fibrosis Caregivers March 16, 2021 CFRI provides a monthly CF Caregivers Online Support Group, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing caregivers working with CF patients. The group meets on the third Tuesday of every month: One session is held for parents of CF patients, from 5-6 pm PT; and another is for partners/spouses/parents of adult patients, which is held from 7-8 pm…

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Cystic Fibrosis Research, Inc.’s Virtual CF Winter-to-Spring Mini Retreat

March 19 - March 21

Virtual CF Winter-to-Spring Mini Retreat March 19-21, 2021 This event will take place fully online and will feature daily exercises, arts and crafts, support group sessions, and education presentations from special guests and CF experts. New participants are encouraged to attend. Registration is required and limited to 100 participants. For any questions, please email retreat@cfri.org.  Click here to register.

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April 2021

Cystic Fibrosis Research, Inc.’s Online Support Group for Adults with Cystic Fibrosis

April 19 @ 6:00 pm - 7:30 pm

Online Support Group for Adults with Cystic Fibrosis April 19, 2021 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF. The group meets on the third Monday of every month, from 6-7:30 pm (9-10:30 pm EST). To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register. …

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Cystic Fibrosis Research, Inc.’s Online Support Group for Cystic Fibrosis Caregivers

April 20 @ 5:00 pm - 6:00 pm

Online Support Group for Cystic Fibrosis Caregivers April 20, 2021 CFRI provides a monthly CF Caregivers Online Support Group, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing caregivers working with CF patients. The group meets on the third Tuesday of every month: One session is held for parents of CF patients, from 5-6 pm PT; and another is for partners/spouses/parents of adult patients, which is held from 7-8 pm…

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May 2021

Cystic Fibrosis Research, Inc.’s Online Support Group for Adults with Cystic Fibrosis

May 17 @ 6:00 pm - 7:30 pm

Online Support Group for Adults with Cystic Fibrosis May 17, 2021 CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF. The group meets on the third Monday of every month, from 6-7:30 pm (9-10:30 pm EST). To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register. …

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Cystic Fibrosis Research, Inc.’s Online Support Group for Cystic Fibrosis Caregivers

May 18 @ 5:00 pm - 6:00 pm

Online Support Group for Cystic Fibrosis Caregivers May 18, 2021 CFRI provides a monthly CF Caregivers Online Support Group, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing caregivers working with CF patients. The group meets on the third Tuesday of every month: One session is held for parents of CF patients, from 5-6 pm PT; and another is for partners/spouses/parents of adult patients, which is held from 7-8 pm…

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