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Sorry Not Sorry

Last night as part of my boyfriend’s birthday gift, we attended a St. Paul Saints’ baseball game in downtown St. Paul, Minnesota. Anyone who knows me even a little bit…

Acromegaly Clinical Trial: MPOWERED

Chiasma is conducting another clinical trial for Acromegaly patients, the MPOWERED study. “It is designed to compare the safety and effectiveness of an investigational new drug product, octreotide capsules, to…

Editor’s Choice: Amazing Young Adults, A Documentary and MG Awareness Month

Happy Father's Day Week Patient Worthians! We hope you celebrated your rare dads this week-- because they deserve it. As you know, it's Myasthenia Gravis Awareness Month so we are highlighting some new drug…

New Treatment Gets to the Heart of CPT II

There's good news for people living with carnitine palmitoyltransferase (CPT) deficiency and their caregivers! Ultragenyx recently released data from an open-label study of the treatment triheptanoin. In the study, five infants…

Ankylosing Spondylitis Drug Could Do More Than Help AS

A year ago, Novartis let people know that its drug, secukinumab, had shown positive results in a Phase III study for the treatment of ankylosing spondylitis. Now, the same drug could…

Are People With Lyme Disease Doomed?

So the more I read about Lyme disease, the more worried I get. With over 300,000 cases alone reported annually to the CDC, we don’t know how many undiagnosed people…

This Family Battling Lyme is Giving Back to Their Community

PW Contributor Alexis Plofchan is 22 years old and a student at William and Mary. She and her parents have been fighting Lyme disease for the past eight years. In…

Mariana’s Medical Journey Part 3: Embracing Difference

This is the last segment of Mariana's medical journey written by Mariana's mother, Carolina. Click here for part one and here for part two. Before the three month check up…

Sorry Not Sorry

Acromegaly Clinical Trial: MPOWERED

Editor’s Choice: Amazing Young Adults, A Documentary and MG Awareness Month

New Treatment Gets to the Heart of CPT II

Ankylosing Spondylitis Drug Could Do More Than Help AS

Are People With Lyme Disease Doomed?

This Family Battling Lyme is Giving Back to Their Community

Mariana’s Medical Journey Part 3: Embracing Difference

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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