Happy Father’s Day Week Patient Worthians!
We hope you celebrated your rare dads this week– because they deserve it. As you know, it’s Myasthenia Gravis Awareness Month so we are highlighting some new drug info on potential treatments for MG.
Secondly, the Amyloidosis Foundation has an exciting announcement on an upcoming documentary. We also have two stories about some brave young adults battling their rare diseases, teaching us that with the right attitude and support system, we can overcome these tough times.
We hope you enjoy this week’s Editor’s Choice!
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Taking a New Look at an Old Drug to Fight MG
There is currently a study in Germany, looking for patients to help explore multiple myeloma drug bortezomi and it’s potential to improve myasthenia gravis outcomes.
To learn more about this clinical trial, check out the story here!
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Coming Soon from the Amyloidosis Foundation!
PW Partner The Amyloidosis Foundation has an exciting announcement: a documentary.
The documentary will feature the affects of Amyloidosis on it’s sufferers, in addition to a lot of the problems with timely diagnosis. Stay tuned for the full release in July!
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This Kid Will Make You Wonder What You’re Doing With Your Life
This young man suffering from MG is showing us what it’s like to be ambitious, even in overcoming extreme obstacles like myasthenia gravis.
He wrote a book, on his cell phone, from his hospital bed. It’s now available on Kindle! Check out the story here.
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These Teen Sisters are Singing Out About Cystic Fibrosis
We highlighted two twin sisters in a press release a few weeks ago, battling cystic fibrosis and spreading awareness.
Well, Patient Worthy had the pleasure of interviewing one of these amazing young women. Read this post to find out what Aleeya had to say!
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