Patient Worthy

5 hours ago

#tscallianceThe Epicom study will evaluate the changes in behavioral and neuropsychiatric symptoms of TSC when an investigational drug is taken as an add-on therapy for patients with TSC who experience seizures. The study will also assess changes in seizure frequency and how well patients tolerate the investigational drug.

Important points about the Epicom study:

• The investigational drug will be taken as add-on therapy to the participant’s other current treatments for TSC
• This is an open-label study, which means that all investigators and participants know which treatment is being given to participants.
• This study has a virtual option, which means that participants will choose whether they want to complete all study visits either from their home (using telemedicine) or at the study site.

To find out if you or your child may be eligible for the Epicom study, please consult your treating doctor to check if you can participate in clinical trials before contacting a study site.

Learn more about the study at www.epicomstudy.com. ... See MoreSee Less

Patient Worthy

5 hours ago

From our Friends at #Alex #adrenoleukodystrophyOur children's book is to support siblings of children affected by childhood cerebral Adrenoleukodystrophy (CCALD) 💙

Read quotes from families who have used the book so far 💬

To access the electronic version: www.calameo.com/books/0071515869acbccecf7da?authid=jBdsVNB0TNPE

To order a free hard copy, email [email protected]

#alextlc #helptocope #helptohope #leukodystrophy ... See MoreSee Less