Paraganglioma
Finding Rare Paraganglioma and Pheochromocytoma Tumors
An article in CURE® describes two extremely rare types of tumors: paraganglioma and pheochromocytoma. One in three thousand individuals may have either or both of
Rare Patient News. Well Done.
A New Alzheimer’s Disease Trial is Slated to Begin
- February 20, 2020
Langerhans Cell Histiocytosis Found in Dinosaur Fossils
Editors Choice: Rare Disease Round Up
A College Student Started a Business to Inspire Others with Spinal Muscular Atrophy
LATEST PATIENT WORTHY ARTICLES
Amyotrophic Lateral Sclerosis
This Doctor Went Back to School to Find a Cure for ALS
As originally reported in Mayo Clinic, Dr. Veronique Belzil realized she wanted to leave her job as a psychologist to find a cure for amyotrophic
Rare Disease
Patient Seminar Series: Those with XLH Share their Stories
The Patient Seminar Series is an event in which those who are affected by rare diseases in some way share their experiences. Patients, family members,
Chronic Kidney Disease
The Future of Patient-Reported Outcomes in Chronic Kidney Disease
According to a story from docwirenews.com, health-related quality of life (HRQOL) is going to be significantly impacted in patients with chronic kidney disease (CKD), especially
Lambert-Eaton Myasthenic Syndrome
Study Tracks Survival, Quality of Life, and Follow up for Lambert-Eaton Myasthenic Syndrome Patients
According to a study published in the scientific journal Neurology, the survival rates of patients with Lambert-Eaton myasthenic syndrome (LEMS) were compared to that of the
Rare Disease
Editor’s Choice: Sending Rare Love on Valentine’s Day
Happy Valentine’s Day! We hope everyone’s enjoying some treats and appreciating the people they love today– whether that’s a romantic partner, a friend, or a
