
An Eleven-Year-Old Girl in Rowlett, Texas is Slated to Make Medical History
Rose Duesterwald - May 19, 2025LISTEN TO OUR PODCAST
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2 hours ago
An 11-year-old girl in Texas is the first-ever person to be treated for an exceptionally rare genetic condition called NARS-1 disorder.
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2 days ago
May 17th is World NF Awareness Day! A reminder of the real impact neurofibromatosis has on thousands of lives. Awareness leads to understanding, and understanding drives progress. #worldNFawarenessday #EndNF #raredisease #shareyourstory
If you're interested in sharing your story, click here: bit.ly/3VuxFDV
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