Gastroschisis: Learn a Little, Love a Little
Gastroschisis is a birth defect where the intestines and sometimes other abdominal organs such as the stomach or liver are outside the body, rather than inside.
- Rare Disease News
Avery’s Angels
Avery’s Angels
Avery’s Angels was founded by the mom of a little boy who passed from a rare condition called gastroschisis. One blog post at a time, Avery’s Angels developed to what is now a nonprofit foundation focused on research to discover causes and promote prevention, foster awareness, and offer family support for the rare gastroschisis community.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Gastroschisis
Take a Minute to Change a Life
Baby Isabella (pictured above) is in serious need of a hospital transfer. Her condition Gastroschisis, is rare. She needs a facility with people who have
Editor’s Choice: YAY for 21st Century Cures and a New ALS Development
It’s Frida-yay Everyone! Celebrate it by catching up on this week’s Editor’s Choice. ‘Tis the season of giving and we have a heartbreaking story on a
Baby Wrapped in Plastic to Save Her Life
It’s hard to imagine what it would be like to hear that there is something wrong with your unborn baby. For those of us who
The Strange Reason She was Born with Gastroschisis
Suzanne Burt’s daughter Sofia, was diagnosed with gastroschisis while in the womb. Gastroschisis is a rare birth defect where the digestive organs are developed outside
When Your Child Has Special Needs, So Do You! Seek Support.
Approximately one in 5,000 babies are born with a birth defect called gastroschisis. When a baby’s intestines are protruding through a hole in the stomach wall
