Editor’s Choice: YAY for 21st Century Cures and a New ALS Development

It’s Frida-yay Everyone!

Celebrate it by catching up on this week’s Editor’s Choice. ‘Tis the season of giving and we have a heartbreaking story on a case of gastroschisis that will surely incite the generosity in you.

We also have some exciting announcements pertaining to the 21st Century Cures Act and ALS. Lastly, we have a post on EDS and it’s support groups!

So sit back and enjoy this week’s Editor’s Choice!



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You’ll Want to Know About This Exciting New ALS Development!

ALS is so rare that developments in the field are always big news.

Check out this post to find out what’s in the works for ALS.

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Why You Have No Excuse Not to Join an EDS Foundation

If you have EDS, just like any rare disease, it’s important to find a community that understands and can provide the support you need to thrive.

Read here to find out about the EDS support available near you.

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Take a Minute to Change a Life

Baby Isabella needs your help.

Please sign this petition to get her the help she needs!

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21st Century Cures Act Passes Senate!

If you haven’t heard already, this is BIG news for the rare disease community.

Read here to find out more on the status.

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