Avery’s Angels was founded by the mom of a little boy who passed from a rare condition called gastroschisis. One blog post at a time, Avery’s Angels developed to what is now a nonprofit foundation focused on research to discover causes and promote prevention, foster awareness, and offer family support for the rare gastroschisis community.
Here is a list of conditions this partner raises awareness and advocacy for:
Gastroschisis is a birth defect where the intestines and sometimes other abdominal organs such as the stomach or liver are outside the body, rather than inside.
Approximately one in 5,000 babies are born with a birth defect called gastroschisis. When a baby’s intestines are protruding through a hole in the stomach wall
Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it’s like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor
At 26 weeks of her pregnancy, this mom knew her baby had serious health concerns. Baby Mayana’s ultrasound was showing her intestines were not inside
Happy Friday Patient Worthians! Did you know it was World PI Week this week? We have a post on the role pets have with PI. We also
July 30th, 2020 is recognized as Gastroschisis Awareness Day. This event aims to help spread awareness about gastroschisis, a rare birth defect, among both the
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