The Myrovlytis Trust’s mission is to transform the outlook for rare diseases. We are dedicated to driving research, raising awareness, providing support, and improving outcomes for rare disease patients and their families.
With an initial focus on Birt-Hogg-Dubé Syndrome and osteosarcoma, we want to ensure that these patients gain access to the same state-of-the-art technologies, breakthroughs and therapies as those with more common diseases.
We strongly believe that by forming communities connecting patients, researchers and clinicians we can drive innovations in research and support and empower individuals affected by rare conditions.
We established the BHD Foundation to provide support and resources to inform the BHD community and to raise awareness of the condition among researchers and health practitioners. We passionately believe that no one should be disadvantaged because they have a rare disease.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
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