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New Rare Disease Discovery, Made Possible By Research

New Rare Disease Discovery, Made Possible By Research

The San Francisco Chronicle had a pretty neat story about how one man's post-cancer neurological issues lead to a so-rare-it's-still-unnamed disease diagnosis. And tracking how we got to the movement…

Continue Reading New Rare Disease Discovery, Made Possible By Research
Researchers Discover Method for Slowing The Progression of PKAN

Researchers Discover Method for Slowing The Progression of PKAN

According to a story from ScienceBlog, the results of an international research study which was led by a team of scientists in Oakland, California and Munich, Germany, has led to…

Continue Reading Researchers Discover Method for Slowing The Progression of PKAN
Retired Professor With Multiple System Atrophy Hopes for a Medically Assisted Death

Retired Professor With Multiple System Atrophy Hopes for a Medically Assisted Death

According to a story from Southwest Journal, retired professor Karen Warren was first diagnosed in 2015 with multiple system atrophy, a lethal neurodegenerative disorder. The disease carries an unpleasant group…

Continue Reading Retired Professor With Multiple System Atrophy Hopes for a Medically Assisted Death
The PoppyPocket Helps Patients Wear Their Infusion Pumps More Comfortably, Safely, and Confidently

The PoppyPocket Helps Patients Wear Their Infusion Pumps More Comfortably, Safely, and Confidently

The PoppyPocket The PoppyPocket is a wearable pocket, created to make wearing infusion pumps and well as other medical devices easier, safer, and more comfortable. It comes with two pockets,…

Continue Reading The PoppyPocket Helps Patients Wear Their Infusion Pumps More Comfortably, Safely, and Confidently
First Patient Dosed in Phase 2 Trial of Experimental Rett Syndrome Treatment

First Patient Dosed in Phase 2 Trial of Experimental Rett Syndrome Treatment

According to a story from sectorpublishingintelligence.co.uk, the biopharmaceutical company Anavex Life Sciences Corp. has just announced that the first patient has been dosed in its phase 2 clinical trial, which…

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Gaucher Disease and Mental Health: Facing the Challenges

Gaucher Disease and Mental Health: Facing the Challenges

According to a story from the National Gaucher Foundation, the stress and difficulties of living with a rare or chronic disease can take a major toll on a patient's mental…

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Study Shows Hypertension Drug Could be Effective Treatment for Huntington’s Disease and Similar Illnesses

Study Shows Hypertension Drug Could be Effective Treatment for Huntington’s Disease and Similar Illnesses

Neurodegenerative Diseases There are a wide range of neurodegenerative diseases including Huntington's disease and Parkinson's disease. These conditions typically affect the older population. As the world's population ages, more people…

Continue Reading Study Shows Hypertension Drug Could be Effective Treatment for Huntington’s Disease and Similar Illnesses
The Impacts of Gaucher Disease on the Skeletal System and the Future of Treatment

The Impacts of Gaucher Disease on the Skeletal System and the Future of Treatment

According to a story from the National Gaucher Foundation, a significant challenge for many patients with Gaucher disease are the effects that the illness can have on bones. Common treatments…

Continue Reading The Impacts of Gaucher Disease on the Skeletal System and the Future of Treatment
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Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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