After the Diagnosis
After the diagnosis/Self harming thoughts After being diagnosed with dystonia and learning it is not a temporary problem (or if you have lived with it for years and are feeling…
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After the Diagnosis
Hidden Opportunities Within Our “Problems”
Life is filled with endless opportunities. Sometimes the opportunities, or silver lining, are hard to see when we have problems with our health, finances, family, or career, but they exist.…
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Hidden Opportunities Within Our “Problems”
The Power of Positive Affirmations
Most people have probably heard the saying, “change your thoughts, change your life.” There is great truth to this because how we think can significantly impact our mental and physical…
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The Power of Positive Affirmations
Editor’s Choice: What NOT to Ask, Sorry Not Sorry
Welcome to this week's Editor's Choice! When you have a rare disease like dystonia, you come across a ton of different reactions from people in regards to your illness. One…
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Editor’s Choice: What NOT to Ask, Sorry Not Sorry
Don’t Ask: Does it Work?
There is currently no cure for most chronic health conditions so treatments are focused on reducing symptoms. I live with a condition called dystonia, a painful neurological movement disorder. Like…
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Don’t Ask: Does it Work?
Editor’s Choice: How Dystonia Feels, POTS and Sugar, and More!
Welcome to this week's Editor's Choice Patient Worthians! This week, we want to spread some info on what it feels like to actually live with rare disease. Not just about…
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Editor’s Choice: How Dystonia Feels, POTS and Sugar, and More!
Editor’s Choice: An Instagramable Week of Selfies, Fitness, Twins and Adolescence
Happy Friday Patient Worthians! Just because Cystic Fibrosis and Lyme Disease Awareness Month is over, doesn't mean we won't stop fighting the good fight for spreading awareness about these diseases! We…
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Editor’s Choice: An Instagramable Week of Selfies, Fitness, Twins and Adolescence
Helpful Suggestions or Harsh Judgement? Living with Rare Disease
While I truly believe that people are well-intentioned, their opinions and comments often miss the mark when it comes to what we experience living with dystonia, or any other chronic…
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Helpful Suggestions or Harsh Judgement? Living with Rare Disease
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