Editor’s Choice: An Instagramable Week of Selfies, Fitness, Twins and Adolescence

Happy Friday Patient Worthians!

Just because Cystic Fibrosis and Lyme Disease Awareness Month is over, doesn’t mean we won’t stop fighting the good fight for spreading awareness about these diseases!

We have an awesome press release from PW Partner Breathe With Me and the Strawfie Challenge, a two-part interview with an amazing young woman living with cystic fibrosis, and the third part of Alexis’ experience battling Lyme disease during her key developmental years. Additionally, PW Contributor Tom Seaman tells us about life with dystonia.

So sit back, relax and enjoy this week’s Editor’s Choice!



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Ohio Twins with Cystic Fibrosis Spreading Awareness

These two Xenia, OH twins are out to spread awareness and support the Strawfie Challenge!

Check out their press release today and stay tuned for a one-on-one Q&A with one of these amazing young women.

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How Taking Selfies Turned Briauna into an Entrepreneur

Part one of Brie Peter’s interview describes how she came to form her organization MusclesToBreathe.org, whose mission is to bring nutrition and fitness products to the CF community.

Check it out here to get inspired!

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What Do You Get When You Mix Lyme Disease with Adolescence?

Part three of Alexis’ interview explains in-depth what it is like to have a chronic illness during formative years.

She paints a clear picture of what it’s like to live with Lyme, while balancing other aspects of growing up.

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Tom and Dad 4-2016

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Helpful Suggestions or Harsh Judgement?: Living with Rare Disease

PW Contributor Tom Seaman is living with dystonia.

In this article, he explains the intricacies of interacting with friends that may or may not understand the true realities of chronic illness.

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