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How do we Move Beyond Pain and Suffering?

How do we Move Beyond Pain and Suffering?

We have all at one time or another experienced pain and suffering of some kind. I sure have, living with dystonia for over 20 years, the first 5 of those years being…

Continue Reading How do we Move Beyond Pain and Suffering?
How Resilient are you Living with Rare Disease? Probably more than you Think

How Resilient are you Living with Rare Disease? Probably more than you Think

Having lived with chronic pain and involuntary muscle contractions from a neurological movement disorder called dystonia since 2001, I felt defeated many times. But I am still here battling every day… and…

Continue Reading How Resilient are you Living with Rare Disease? Probably more than you Think
We Have to Stop Beating Ourselves up When We Are in Pain

We Have to Stop Beating Ourselves up When We Are in Pain

Chronic pain reminds me of a bully that picks on kids in the schoolyard every day. Like the bully, chronic pain does not follow any rules and after multiple beatings,…

Continue Reading We Have to Stop Beating Ourselves up When We Are in Pain
The Power of Our Inner Dialogue on Our Health

The Power of Our Inner Dialogue on Our Health

I believe very strongly in the power of thoughts and words as it relates to my health. I say this because I have lived with a painful chronic neurological movement…

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Thanksgiving Quotes We Can Use All Year Long

Thanksgiving Quotes We Can Use All Year Long

I love quotes. Some of them I read or hear and they go in one ear and out the other. Those that really resonate stick with me and help change…

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When Living with a Rare Disease, Isolating Ourselves can Often Feel Less Lonely

When Living with a Rare Disease, Isolating Ourselves can Often Feel Less Lonely

This may sound like a strange title so let me explain. I live with a health condition called dystonia, which is a neurological movement disorder. It is the third most…

Continue Reading When Living with a Rare Disease, Isolating Ourselves can Often Feel Less Lonely
How Life Before and After Chronic Pain from Dystonia Changed My Entire World

How Life Before and After Chronic Pain from Dystonia Changed My Entire World

For most of my 21 years with chronic pain and other symptoms from dystonia, a neurological movement disorder, I viewed it as a curse; an evil intruder that ruined my life.…

Continue Reading How Life Before and After Chronic Pain from Dystonia Changed My Entire World

What is Dystonia and What Does it Feel Like? Dystonia Awareness Month

September is Dystonia Awareness Month so I want to share a little about it and how it impacts those of us who live with it. I have to be honest…

Continue Reading What is Dystonia and What Does it Feel Like? Dystonia Awareness Month
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The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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