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Woman Abseils Down Croke Park to Raise Funds and Awareness for Vici Syndrome

Woman Abseils Down Croke Park to Raise Funds and Awareness for Vici Syndrome

  • Post author:Jessica Lynn
  • Post published:August 28, 2023
  • Post category:Vici Syndrome

21-year-old Chloe Feighery has a deep love and appreciation for her younger sister Heidi, who is just one and a half years old. When she learned that she was becoming…

Continue Reading Woman Abseils Down Croke Park to Raise Funds and Awareness for Vici Syndrome
Volunteers Abseil to Raise Funds for Girl with Nonketotic Hyperglycinemia
Photo: https://unsplash.com/photos/qOR762W7OvA

Volunteers Abseil to Raise Funds for Girl with Nonketotic Hyperglycinemia

  • Post author:Jessica Lynn
  • Post published:July 20, 2022
  • Post category:nonketotic hyperglycinemia

  When Eleni was first born, doctors and nurses told her parents, Neil and Eloise, that their daughter would most likely not survive. That’s because Eleni had been diagnosed with…

Continue Reading Volunteers Abseil to Raise Funds for Girl with Nonketotic Hyperglycinemia
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
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