Aiden Jack Seeger Foundation

https://pixabay.com/en/map-usa-map-usa-united-states-1149538/

Spring is for Setting World Records and Raising ALD Awareness

Post author:Patient Worthy Contributor
Post published:March 22, 2017
Post category:Adrenoleukodystrophy Rare Disease

This week is a small win for adrenoleukodystrophy (ALD) awareness and for these mini-bikers. Kevin Bean're and Tom Ford are mini-biking across the country, from Florida to California, to raise awareness…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Keep Up to Date

Learn More