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aplastic anemia research

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Patient Voices Shape Progress in PNH and Aplastic Anemia Care

Patient Voices Shape Progress in PNH and Aplastic Anemia Care

  • Post author:Bree Clare
  • Post published:July 29, 2025
  • Post category:paroxysmal nocturnal hemoglobinuria

A growing focus on patient-reported outcomes (PROs) is transforming the management of Paroxysmal Nocturnal Hemoglobinuria (PNH) and aplastic anemia, two rare and serious blood disorders. According to a recent article…

Continue Reading Patient Voices Shape Progress in PNH and Aplastic Anemia Care
The Best Hospital for Kids with Aplastic Anemia Will Shock You
Source: pixabay.com

The Best Hospital for Kids with Aplastic Anemia Will Shock You

  • Post author:Alisha Stone
  • Post published:November 1, 2016
  • Post category:Aplastic anemia/Rare Disease

Listen up. This is important for the aplastic anemia community—especially for children who’ve been diagnosed with this serious condition. The Dana-Farber Children’s Cancer and Blood Disorders Hospital in Boston, MA…

Continue Reading The Best Hospital for Kids with Aplastic Anemia Will Shock You
Why It Pays To Be Smart About Aplastic Anemia
Source: https://pixabay.com/en/blood-cells-red-medical-medicine-1813410/

Why It Pays To Be Smart About Aplastic Anemia

  • Post author:Alisha Stone
  • Post published:September 13, 2016
  • Post category:Aplastic anemia/Rare Disease

I recently posted an article on aplastic anemia in response to another post that I’d read. I felt compelled to mention that a dear friend of mine was diagnosed with…

Continue Reading Why It Pays To Be Smart About Aplastic Anemia
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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