ataxia and me – Patient Worthy

23/02/2016 Pics (C) Huw John, Cardiff. MANDATORY BYLINE - Huw John, Cardiff Alan Thomas from Llanboidy HealthWise Wales, a new project which will inform future generations’ NHS services, to help protect against fatal illnesses. e-mail: [email protected] Web: www.huwjohn.com

I Have a Rare Disease And I Am Crossing Borders

Post author:Patient Worthy Contributor
Post published:February 27, 2018
Post category:Ataxia-telangiectasia Friedreich ataxia Rare Disease

My name is Alan. I cross many borders as a person with a rare disease. These borders are physical, geographical and psychological. Crossing so many borders has earned me the…

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