Families in England affected by Batten disease are struggling to access effective treatments in their home country. Nicole and Jessica Rich are two young girls who live with their families…
The 2018 BDSRA Family Conference "Walk the Line For a Cure" This event is an invitation for the Batten disease patient community, including advocates, families, and patients themselves, to converge…
In 2017, more than 450 participants at this conference gathered to learn more about the most recent research, education and all things Batten Disease. The deadline to register is June…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
