Patient Worthy is honored to be able to share Zoe Ridgeway's story by way of theBHDFoundation.org. Zoe's story was shared for Rare Disease Day 2025 and the BHD Foundation believes…
The BHD Foundation's Meet the Expert World Pneumothorax Day Webinar June 24, 2024 Join us on World Pneumothorax Day for a special Meet the Expert event! We will be joined…
The BHD Foundation's BHD Community Symposium 2024 October 12, 2024 This year's symposium is focussed on the patient community. The agenda is being set by the patients following feedback from…
NOTE: The article was originally published as a blog post from the BHD Foundation a nonprofit patient advocacy organization. Birt-Hogg-Dubé syndrome (BHD) is a rare inherited condition associated with changes…
The Myrovlytis Trust, a UK Charity focused on promoting research and advancing education for rare diseases, and Patient Worthy are now partners! This organization has focused primarily on Birt-Hogg-Dubé syndrome…
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