The BHD Foundation's Meet the Expert World Pneumothorax Day Webinar June 24, 2024 Join us on World Pneumothorax Day for a special Meet the Expert event! We will be joined…
The BHD Foundation's BHD Community Symposium 2024 October 12, 2024 This year's symposium is focussed on the patient community. The agenda is being set by the patients following feedback from…
NOTE: The article was originally published as a blog post from the BHD Foundation a nonprofit patient advocacy organization. Birt-Hogg-Dubé syndrome (BHD) is a rare inherited condition associated with changes…
Meet the Experts: Lung February 1, 2023 We are delighted to announce Professor Lisa Henske will be our next expert discussing her work on BHD and lung cysts. Lisa is…
According to a story from the BHD Foundation, Patient Worthy partner The Myrovlytis Trust, along with the BHD Foundation and Pulse Infoframe, are collaborating on an international Birt-Hogg-Dubé (BHD) syndrome…
The Myrovlytis Trust, a UK Charity focused on promoting research and advancing education for rare diseases, and Patient Worthy are now partners! This organization has focused primarily on Birt-Hogg-Dubé syndrome…
The BHD Virtual Symposium October 21-22, 2021 We would be absolutely delighted to welcome patients and families to both the clinical/research sessions as well as the patient-focused sessions. Please make…
Patient Worthy makes a point to develop relationships with advocacy groups focused on rare diseases in order to help spread awareness, highlight patient experiences, and bring attention to community events.…
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