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For Jaicion: A Mother’s Strength, A Son’s Light, All in the Face of SMA

For Jaicion: A Mother’s Strength, A Son’s Light, All in the Face of SMA

  • Post author:Patient Worthy Contributor
  • Post published:May 22, 2025
  • Post category:Werdnig-Hoffmann disease

My name is Elena, mother to Jaicion. In 2021, I was pregnant with Jaicion, and the doctors ran tests that they would run on any mother-to-be. My doctor called me…

Continue Reading For Jaicion: A Mother’s Strength, A Son’s Light, All in the Face of SMA
The Ruminations of a Grin2b Mom

The Ruminations of a Grin2b Mom

  • Post author:PW Collaborator
  • Post published:March 10, 2025
  • Post category:GRIN disorder

Patient Worthy is grateful to present this article by way of the CureGRIN Foundation.  CureGRIN is a foundation founded and run by parents who are committed to improving the lives of people…

Continue Reading The Ruminations of a Grin2b Mom
A Geriatrician Gets Frontline Experience as a Caregiver

A Geriatrician Gets Frontline Experience as a Caregiver

  • Post author:Rose Duesterwald
  • Post published:December 16, 2021
  • Post category:Motor neuron disease

At first, Dr. Rebecca Elon began to notice her husband’s personality changes and an occasional lapse in judgment. These incidents occurred in 2013. Although Dr. Elon’s husband, William Adler III…

Continue Reading A Geriatrician Gets Frontline Experience as a Caregiver
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Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney Cancerhttps://patientworthy.com/2026/01/20/finding-strength-together-scott-and-katies-journey-with-advanced-kidney-cancer/
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
Read Full Story Here
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