Sabiha Aoudia and Atmane Abbas were visiting the United States from Algeria when, suddenly, Aoudia began experiencing some pregnancy complications. She underwent an emergency C-section and Alice, the couple's…
Laura Brown never planned on running more than one marathon. In 2012, she tackled a marathon as a way to cross an item off of her bucket list. But since…
According to a story from Hindawi, a recent study focused on congenital central hypoventilation syndrome serves to bring to light the importance of genetic testing of close family members based…
What started as an outing to a Virginia Tech event blossomed into the mutual love between a young girl with a rare disease and the Virginia Tech sports community (aka…
According to a story from The Indian Express, a young baby at the Sir Ganga Ram Hospital in Delhi was just diagnosed with an incredibly rare disease that has less…
"The Future is NOW—Priorities, Partnerships, and Patient Voice" The conference will be an event for health professionals and CCHS patient community to come together in collaboration, communication, and support. Attendees…
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