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CharlieFest on March 9: An Event to Raise Ring Chromosome 14 Syndrome Awareness
source: shutterstock.com

CharlieFest on March 9: An Event to Raise Ring Chromosome 14 Syndrome Awareness

  • Post author:Jessica Lynn
  • Post published:January 30, 2024
  • Post category:Rare Disease

Ring chromosome 14 syndrome is an extremely rare chromosomal disorder that was first described in medical literature in 1971. An estimated 40-80 cases have since been discovered and described. So…

Continue Reading CharlieFest on March 9: An Event to Raise Ring Chromosome 14 Syndrome Awareness
Middle Schoolers Build Mobility Car for Girl with Trisomy 18
source: pixabay.com

Middle Schoolers Build Mobility Car for Girl with Trisomy 18

  • Post author:Jessica Lynn
  • Post published:June 1, 2022
  • Post category:Trisomy 18

Rachel Harrison remembers what the doctors told her when her daughter Hope was born – that she wasn’t going to make it. You see, Hope was born with a rare…

Continue Reading Middle Schoolers Build Mobility Car for Girl with Trisomy 18
New Scholarship Available from the Central Mississippi Down Syndrome Society
markmags / Pixabay

New Scholarship Available from the Central Mississippi Down Syndrome Society

  • Post author:Jessica Lynn
  • Post published:February 10, 2022
  • Post category:Down Syndrome

The Central Mississippi Down Syndrome Society (CMDSS) is a parent-driven nonprofit organization which serves to provide support for Central Missourians with Down syndrome and their families. In addition to offering…

Continue Reading New Scholarship Available from the Central Mississippi Down Syndrome Society
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney Cancerhttps://patientworthy.com/2026/01/20/finding-strength-together-scott-and-katies-journey-with-advanced-kidney-cancer/
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
Read Full Story Here
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