CoPAN Archives - Patient Worthy

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Got PKAN? You Should Know About this Resource!

Post author:Trudy Horsting
Post published:June 6, 2017
Post category:Pantothenate Kinase-associated Neurodegeneration Rare Disease

The Neurodegeneration with Brain Iron Accumulation (NBIA) Disorders Association was established in 1996 to serve and support all those affected by PKAN, PLAN, MPAN, BPAN, and CoPAN. Of these, PKAN or…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Got PKAN? You Should Know About this Resource!

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