BASELINE
Editor's Note: Patient Worthy is proud to share this article from our friends at the Courageous Parents Network. A parent often can sense when there has been a shift in…
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BASELINE
Learning Her Again: A Mother’s Understanding of Baseline
Editor's Note: Patient Worthy is honored to share this caregiver story with you, originally written by Aisling Melton, Parent Champion at Courageous Parents Network. In medicine, baseline is a simple…
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Learning Her Again: A Mother’s Understanding of Baseline
Pediatric Palliative Care
Editor's Note: Patient Worthy is honored to bring you this article, originally written by Kelsey Stanczyk, and shared with us by our friends at the Courageous Parents Network. So much…
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Pediatric Palliative Care
Why Palliative Care Shouldn’t Wait: A Nurse and Mother’s Story
Editor's Note: Patient Worthy is proud to share this story from the Courageous Parents Network, originally written by Kelsey Stanczyk. When I first became a nurse, I worked in an…
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Why Palliative Care Shouldn’t Wait: A Nurse and Mother’s Story
Navigating Medical Complexity Through Shared Decision-Making
Editor's Note: Patient Worthy is proud to share this from our friends at the Courageous Parents Network. Throughout our lives we are faced with decisions of many kinds. Some involve…
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Navigating Medical Complexity Through Shared Decision-Making
The Weight of a Decision
Editor's Note: We're proud to be the first to share this story by Blair Young Whitworth, a Parent Champion of the Courageous Parents Network. There were so many anxious years…
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The Weight of a Decision
Anticipatory Guidance: Proactive Communication About What to Expect
Editor's Note: Patient Worthy is honored to share this article from our friends at Courageous Parents Network. Parents of well children regularly receive anticipatory guidance–proactive communication about what’s coming in…
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Anticipatory Guidance: Proactive Communication About What to Expect
The Gift of Anticipatory Guidance: What Every Family Deserves
Editor's Note: Patient Worthy is proud to share this caregiver story from our friends at Courageous Parents. — A parent’s perspective by Maria Hopfgarten, Courageous Parent Network Parent Champion. When…
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The Gift of Anticipatory Guidance: What Every Family Deserves
A Review of ‘Rock Bottom: Gathering Gratitude for God in the Difficulties of Life’
"Rock Bottom" is the story of a family who’s second born child, a son named Ashton, was born with Mucolipidosis Type II, a disease so rare and so frequently mistaken…
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A Review of ‘Rock Bottom: Gathering Gratitude for God in the Difficulties of Life’
The Ordinary Instant and the Shattering of Time
Patient Worthy is grateful to present this story written by Bud Hager by way of the Courageous Parents Network. CPN is a nonprofit organization that has oriented, equipped and empowered…
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The Ordinary Instant and the Shattering of Time
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Introducing NeuroJourney from the Courageous Parents Network
Written by Carol Trager Parents of a “rare” child constantly search for answers, for direction, for hope. They collect information and advice from a variety of sources, yet they must…
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Introducing NeuroJourney from the Courageous Parents Network
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Advocating for a RARE Child: Perspectives and Tools for Caregivers
Families caring for medically complex children face almost unfathomable decisions, often with no prior experience to guide their thinking and acting. Second only to the clinician expertise on which…
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Advocating for a RARE Child: Perspectives and Tools for Caregivers
