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BASELINE

BASELINE

  • Post author:Patient Worthy Contributor
  • Post published:March 13, 2026
  • Post category:Rare Disease

Editor's Note: Patient Worthy is proud to share this article from our friends at the Courageous Parents Network. A parent often can sense when there has been a shift in…

Continue Reading BASELINE
Learning Her Again: A Mother’s Understanding of Baseline

Learning Her Again: A Mother’s Understanding of Baseline

  • Post author:Patient Worthy Contributor
  • Post published:March 12, 2026
  • Post category:Brain Cancer

Editor's Note: Patient Worthy is honored to share this caregiver story with you, originally written by Aisling Melton, Parent Champion at Courageous Parents Network. In medicine, baseline is a simple…

Continue Reading Learning Her Again: A Mother’s Understanding of Baseline
Pediatric Palliative Care

Pediatric Palliative Care

  • Post author:PW Collaborator
  • Post published:January 21, 2026
  • Post category:Rare Disease

Editor's Note: Patient Worthy is honored to bring you this article, originally written by Kelsey Stanczyk, and shared with us by our friends at the Courageous Parents Network. So much…

Continue Reading Pediatric Palliative Care
Why Palliative Care Shouldn’t Wait: A Nurse and Mother’s Story

Why Palliative Care Shouldn’t Wait: A Nurse and Mother’s Story

  • Post author:Patient Worthy Contributor
  • Post published:January 19, 2026
  • Post category:Rare Disease

Editor's Note: Patient Worthy is proud to share this story from the Courageous Parents Network, originally written by Kelsey Stanczyk. When I first became a nurse, I worked in an…

Continue Reading Why Palliative Care Shouldn’t Wait: A Nurse and Mother’s Story
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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