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Cystinosis treatment

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El preferiría no ser uno-en-un-million

El preferiría no ser uno-en-un-million

  • Post author:Patient Worthy Contributor
  • Post published:January 15, 2017
  • Post category:Cystinosis/Rare Disease

Cuando la mamá de Hagan dice a los 12 meses de edad, muchacho irlandés que él es uno en un millón, no es broma - y que no es exactamente…

Continue Reading El preferiría no ser uno-en-un-million
Why You Should Care That Clint Eastwood Looks Like a Velociraptor
source: Pixabay.com

Why You Should Care That Clint Eastwood Looks Like a Velociraptor

  • Post author:Lady Kehveen Abernathy
  • Post published:May 9, 2016
  • Post category:Cystinosis/Rare Disease

Let's be real... it personally offends me that Raptor Pharmaceuticals' logo isn't a velociraptor. Like, that is a missed golden opportunity. I'm just saying... there are a lot of drugs out…

Continue Reading Why You Should Care That Clint Eastwood Looks Like a Velociraptor
Cystinosis Treatments Are in the Works at NIH
Pixabay

Cystinosis Treatments Are in the Works at NIH

  • Post author:Erica Zahn
  • Post published:April 6, 2016
  • Post category:Cystinosis/Rare Disease

Mika Covington was diagnosed with cystinosis when she was 10 months old, and has struggled with its effects throughout her life. Cystinosis is usually diagnosed before the patient's second birthday. It's…

Continue Reading Cystinosis Treatments Are in the Works at NIH

He’d Rather Not be One-in-a-Million

  • Post author:Erica Zahn
  • Post published:November 10, 2015
  • Post category:Cystinosis/Rare Disease

When Hagan's mom tells the 12-month-old Irish boy that he's one in a million, she isn't kidding--and it's not exactly a compliment, either. Those odds refer to the fact that…

Continue Reading He’d Rather Not be One-in-a-Million
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