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Devic’s disease

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Firefighters Come Together for Colleague with Devic’s Syndrome

Firefighters Come Together for Colleague with Devic’s Syndrome

  • Post author:Jean Martell
  • Post published:August 6, 2019
  • Post category:Devic's Syndrome (Neuromyelitis Optica)/Rare Disease

We love a good story about a community coming together! Firefighters across the Atlanta area came together to support a retired fire chief who has been partly paralyzed after being…

Continue Reading Firefighters Come Together for Colleague with Devic’s Syndrome
Positive Results Announced from Phase 2b Trial for Neuromyelitis Optica

Positive Results Announced from Phase 2b Trial for Neuromyelitis Optica

  • Post author:Trudy Horsting
  • Post published:January 7, 2019
  • Post category:Myositis/Neuromyelitis Optica

Neuromyelitis optica (NMO), or Devic's disease is a rare autoimmune condition which causes inflammation in the optic nerve and/or spinal cord. The condition affects 5 in every 1,000,000 people and…

Continue Reading Positive Results Announced from Phase 2b Trial for Neuromyelitis Optica
NMO Folks Are Breaking Barriers
[Source: pixabay.com]

NMO Folks Are Breaking Barriers

  • Post author:Sabina Kennedy
  • Post published:August 4, 2017
  • Post category:Devic's Syndrome (Neuromyelitis Optica)/Rare Disease

This is not a warning, but some friendly advice: Start planning for next year and mark your calendar for February 28, 2018—it’s world Rare Disease Day! It’s the day that…

Continue Reading NMO Folks Are Breaking Barriers
Neuromyelitis Optica (NMO) Doesn’t Fool Around! Get Diagnosed, Get Treated!

Neuromyelitis Optica (NMO) Doesn’t Fool Around! Get Diagnosed, Get Treated!

  • Post author:Erica Zahn
  • Post published:March 22, 2017
  • Post category:Devic's Syndrome (Neuromyelitis Optica)/Rare Disease

Devic's disease, also known as neuromyelitis optica (NMO), affects the spinal cord and the optic nerves. It is a relapsing-remitting disease, meaning its symptoms can appear and disappear. In NMO,…

Continue Reading Neuromyelitis Optica (NMO) Doesn’t Fool Around! Get Diagnosed, Get Treated!
Tickling Tastebuds and Making a Difference to NMO
Source: Pixabay.com

Tickling Tastebuds and Making a Difference to NMO

  • Post author:EmpatheticBadass
  • Post published:October 27, 2016
  • Post category:Devic's Syndrome (Neuromyelitis Optica)/Rare Disease/Timely

If you’re a fan of the TV show MasterChef USA, you may remember Christina Ha, the contestant that cooked her way into our hearts—and into the winner’s circle!—despite the fact…

Continue Reading Tickling Tastebuds and Making a Difference to NMO
The Devil is in the Devic’s Disease: What You Need to Know

The Devil is in the Devic’s Disease: What You Need to Know

  • Post author:Erica Zahn
  • Post published:September 2, 2016
  • Post category:Devic's Syndrome (Neuromyelitis Optica)/Timely

Optic neuromyelitis, also known as Devic's disease, is a rare disorder that affects the eyes and spinal cord. It occurs in approximately one in five out of 100,000 people, and…

Continue Reading The Devil is in the Devic’s Disease: What You Need to Know
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney Cancerhttps://patientworthy.com/2026/01/20/finding-strength-together-scott-and-katies-journey-with-advanced-kidney-cancer/
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
Read Full Story Here
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