EBS – Patient Worthy

Adam Nelson’s Epidermolysis Bullosa Simplex Diagnosis Didn’t Stop Him From Living Out His Army Dream

Post author:Trudy Horsting
Post published:April 28, 2021
Post category:Epidermolysis Bullosa

My name is Adam Nelson. I am 33 years old and I was born with a rare genetic connective tissue disorder known as epidermolysis bullosa simplex (EBS) of the Weber-Cockayne…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Keep Up to Date

Learn More