fighting hard – Patient Worthy

Building Community Among Children with Rare Diseases: The Fighting H.A.R.D. Foundation

Post author:Trudy Horsting
Post published:March 23, 2020
Post category:Gastroparesis Muckle-Wells Syndrome Primary Immunodeficiencies

The Fighting HARD Foundation Rare diseases are difficult to face for a myriad of reasons. They can be financially burdensome, physically painful, and emotionally draining. Further, they can make patients…

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

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