Testing the Safety and Efficacy of Tradipitant for Patients with Diabetic and Idiopathic Gastroparesis
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Testing the Safety and Efficacy of Tradipitant for Patients with Diabetic and Idiopathic Gastroparesis

by Danielle Bradshaw from In The Cloud Copy Gastroparesis is a condition in which your stomach’s muscles aren’t able to completely move food through your stomach. Symptoms of gastroparesis include…

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Building Community Among Children with Rare Diseases: The Fighting H.A.R.D. Foundation

The Fighting HARD Foundation Rare diseases are difficult to face for a myriad of reasons. They can be financially burdensome, physically painful, and emotionally draining. Further, they can make patients…

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Gastroparesis Symptoms Significantly Improved via Gastric Electrical Stimulation
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Gastroparesis Symptoms Significantly Improved via Gastric Electrical Stimulation

  Gastric electrical stimulation (GES) has long been suggested as a treatment for symptoms of gastroparesis, but the use of the technique has been deemed controversial. A recent study published…

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Two Sisters with Rare Conditions Founded The Fighting H.A.R.D. Foundation to Help Other Patients Feel Less Alone

The Origins of Fighting H.A.R.D. The Fighting H.A.R.D. Foundation was established in 2015 by two sisters who both live with multiple rare diagnoses. 16-year-old Allie is diagnosed with juvenile rheumatoid…

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Raising a Son While Managing POTS, EDS, and Gastroparesis: Lindsay’s Story
Photo courtesy of Lindsay Fogarty

Raising a Son While Managing POTS, EDS, and Gastroparesis: Lindsay’s Story

My name is Lindsay Fogarty. I am a 25-year-old single mother to a wonderful 6, almost 7-year-old son, named Andrew. As I am writing this I am listening to the…

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Meet the Mom Fundraising for her Two Adult Children with Rare Diseases

I am a caregiver mom to my two special needs, young adult, rare disease kids. I am also a recent widow; previously, I was a caregiver wife to my very…

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Editor’s Choice: Orkambi Shouldn’t be a Pie in the Sky for UK Patients

Happy Independence Day Weekend Everyone! We have the latest update on the UK cystic fibrosis fight for Orkambi. We also have a great contribution on the importance of taking care…

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