August is Gastroparesis Awareness Month!
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August is Gastroparesis Awareness Month!

First established by the International Foundation for Gastrointestinal Disorders (IFFGD) in 2016, Gastroparesis Awareness Month is designed to increase awareness of gastroparesis and how it affects the people who have…

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Rare Community Profiles: How Two Parents Are Working to Change the Narrative Around CASK Gene Disorder
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Rare Community Profiles: How Two Parents Are Working to Change the Narrative Around CASK Gene Disorder

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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August is Gastroparesis Awareness Month!
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August is Gastroparesis Awareness Month!

  First established by the International Foundation for Gastrointestinal Disorders (IFFGD) in 2016, Gastroparesis Awareness Month is designed to increase awareness of gastroparesis and how it affects the people who…

Continue Reading August is Gastroparesis Awareness Month!

Individuals with Gastroparesis or Crohn’s Disease May Be More Susceptible to Auto-Brewery Syndrome

Auto-Brewery Syndrome Auto-brewery syndrome is also known as gut fermentation syndrome. It occurs when fungi or bacteria within the gut produce ethanol by endogenous fermentation. Several different strains may be…

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New Campaign Emphasizes How Migraines Can be Connected to Cyclic Vomiting Syndrome and Gastroparesis
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New Campaign Emphasizes How Migraines Can be Connected to Cyclic Vomiting Syndrome and Gastroparesis

Impel NeuroPharma has been working on a campaign focused on migraines. It is called Reroute Migraine Relief, and it was built in coordination with an artist who suffers from migraines…

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New Social Media Campaign for Diabetic Gastroparesis Provides Patients Resources and Community
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New Social Media Campaign for Diabetic Gastroparesis Provides Patients Resources and Community

Evoke Pharma focuses on gastrointestinal disease treatments. Eversana helps to provide commercial services for the life science industry. The two companies have just joined together to launch a social media…

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Testing the Safety and Efficacy of Tradipitant for Patients with Diabetic and Idiopathic Gastroparesis
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Testing the Safety and Efficacy of Tradipitant for Patients with Diabetic and Idiopathic Gastroparesis

by Danielle Bradshaw from In The Cloud Copy Gastroparesis is a condition in which your stomach’s muscles aren’t able to completely move food through your stomach. Symptoms of gastroparesis include…

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A Doctor’s Opinion on Diet and Gastroparesis
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A Doctor’s Opinion on Diet and Gastroparesis

  When I was younger, I was diagnosed with Kawasaki disease, an inflammatory disease that impacts the coronary arteries. As I've grown up, I've become increasingly interested in how that…

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Building Community Among Children with Rare Diseases: The Fighting H.A.R.D. Foundation

The Fighting HARD Foundation Rare diseases are difficult to face for a myriad of reasons. They can be financially burdensome, physically painful, and emotionally draining. Further, they can make patients…

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Two Sisters with Rare Conditions Founded The Fighting H.A.R.D. Foundation to Help Other Patients Feel Less Alone

The Origins of Fighting H.A.R.D. The Fighting H.A.R.D. Foundation was established in 2015 by two sisters who both live with multiple rare diagnoses. 16-year-old Allie is diagnosed with juvenile rheumatoid…

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