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Hereditary Angioedema

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Why do Pharma Companies Care About Rare Diseases?

Why do Pharma Companies Care About Rare Diseases?

  • Post author:Patient Worthy Contributor
  • Post published:June 17, 2015
  • Post category:HAE/Rare Disease

Why Pharma cares more and more about Rare Diseases Congress. The FDA. Patient Advocates. And Venture Philanthropy. When it comes to rare diseases, medicines haven't always been readily available. A…

Continue Reading Why do Pharma Companies Care About Rare Diseases?

5 Things to Do to Prepare Your HAE Child For School

  • Post author:Rebekah
  • Post published:June 16, 2015
  • Post category:HAE/Rare Disease

Sudden HAE attacks can result in hospitalization or a few days in bed at home; forcing many patients to miss work or school.A study was conducted in Germany, Denmark, and…

Continue Reading 5 Things to Do to Prepare Your HAE Child For School

HAE Triggers: Can you Avoid Them?

  • Post author:Patient Worthy Contributor
  • Post published:June 16, 2015
  • Post category:HAE/Rare Disease

Many people with hereditary angioedema (HAE) will tell you that really aren't sure what causes their attacks, but they can identify some common triggers such as stress, anxiety, minor trauma…

Continue Reading HAE Triggers: Can you Avoid Them?
A Case of “Big Brother” Being Good for HAE Sufferers

A Case of “Big Brother” Being Good for HAE Sufferers

  • Post author:Patient Worthy Contributor
  • Post published:June 15, 2015
  • Post category:HAE/Rare Disease

Suffering From HAE?! Biofeedback Reporting May Save Your Life! There's a lot of buzz on BioRx, a national specialty pharmaceutical company, based in Cincinnati, Ohio. It's established a successful Biofeedback…

Continue Reading A Case of “Big Brother” Being Good for HAE Sufferers
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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