New Results Published from Phase 3 Clinical Trial Evaluating Berotralstat for HAE

  On October 22, 2020, BioCryst Pharmaceuticals, Inc. ("BioCryst") announced the publication of data from a Phase 3 clinical trial evaluating berotralstat for patients with hereditary angioedema (HAE). As a…

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Scientists Have Identified Genes Involved in Hereditary Angioedema Acute Attacks

Researchers have carried out a study into the genetic mechanisms involved in hereditary angioedema acute attacks. They found that two genes, called uPAR and ADM, had a particularly strong influence.…

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Living with Hereditary Angiodema: My Life was Changed in an Instant, Part One
Source: Loukisha Olive-McCoy

Living with Hereditary Angiodema: My Life was Changed in an Instant, Part One

From birth until my mid-thirties I was a very active person. I loved dancing West Coast Swing, doing yoga, and cooking large meals for my ‘Ohana. The word "'Ohana" describes…

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Treatment for Hereditary Angiodema Gets Marketing Approval From the EMA
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Treatment for Hereditary Angiodema Gets Marketing Approval From the EMA

According to a recent story from pm360online.com, the pharmaceutical company Shire announced that the marketing application for its drug product lanadelumab has gained approval from the European Medicines Agency (EMA).…

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This FDA Approval for Haegarda Just Changed Lives
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This FDA Approval for Haegarda Just Changed Lives

A new therapy option for hereditary angioedema (HAE) has recently received FDA approval! Marketed as Haegarda by biopharmaceutical company, CSL Behring, this subcutaneous C1 Esterase Inhibitor is now usable in…

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Promising Results From Preventative HAE Treatment Study
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Promising Results From Preventative HAE Treatment Study

Attention hereditary angioedema patients: preventative treatment is on the horizon! Shire plc is one of the global leaders in rare disease research and pharmacology, and the group recently released positive…

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HAE In the News

Want some more news, events and announcements on HAE? We got 'em! [one_half]     [/one_half] [one_half_last] Get the Most Updated HAE Treatment Information Treatments Are Available: What Now? New,…

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People with HAE Don’t Need Your Crap
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People with HAE Don’t Need Your Crap

One of the hardest parts of living with a rare or chronic condition such as hereditary angioedema (HAE) is being told “but you don’t look sick!”—even when you feel like…

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Did Pregnancy Trigger This Woman’s HAE Symptoms?
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Did Pregnancy Trigger This Woman’s HAE Symptoms?

Lynn Holman believes that her pregnancy may be the reason she got diagnosed with hereditary angioedema (HAE). At first, Lynn thought she had a bad allergic reaction one morning because…

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