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Human Interest Story

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Revolutionary SMA Drug Denied to Children in Northern Ireland
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Revolutionary SMA Drug Denied to Children in Northern Ireland

  • Post author:Al Pendleton
  • Post published:February 23, 2017
  • Post category:Rare Disease/Spinal Muscular Atrophy

The idea that a possibly life-altering medication is being denied to children is certainly something that will get the fires of the masses stoked. Imagine how inflamed the mob will…

Continue Reading Revolutionary SMA Drug Denied to Children in Northern Ireland

How in the World Did This Mother NOT Fall Apart?

  • Post author:Sabina Kennedy
  • Post published:January 13, 2017
  • Post category:Alveolar capillary dysplasia/Rare Disease

“Motherhood is the hardest job you’ll ever love.” I’m not sure who first coined that phrase, but its truth becomes clearer to me every day. And nowhere is that truth…

Continue Reading How in the World Did This Mother NOT Fall Apart?
The Powerful Story of One Life with Cystic Fibrosis

The Powerful Story of One Life with Cystic Fibrosis

  • Post author:EmpatheticBadass
  • Post published:January 20, 2016
  • Post category:Cystic Fibrosis

A college class in solo performance, taken during his senior year, changed Brennen Reeve’s life. Why? It was the first time the now 24-year-old ever really shared his experiences with cystic…

Continue Reading The Powerful Story of One Life with Cystic Fibrosis

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Metastatic Breast Cancer: Navigating Grief


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Rethinking What It Means to Live With Acromegaly


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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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