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Hunter Syndrome Fundraiser

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  2. Hunter Syndrome Fundraiser
Lion Roaring to Find Hunter Syndrome Funding
https://pixabay.com/en/mountain-lion-kitten-portrait-cat-1746823/

Lion Roaring to Find Hunter Syndrome Funding

  • Post author:Agena Boles
  • Post published:July 5, 2017
  • Post category:MPS II (Hunter Syndrome)

Everyone knows lions are the kings of the jungle/mountain/movie studio. They're brave and ferocious! "Lion" not only describes the personality of one fun little boy living with Hunter syndrome (MPS…

Continue Reading Lion Roaring to Find Hunter Syndrome Funding
A Special Day for Raising Hunter Syndrome Awareness
Source: pixabay.com

A Special Day for Raising Hunter Syndrome Awareness

  • Post author:Ronald Ledsen
  • Post published:February 17, 2017
  • Post category:MPS II (Hunter Syndrome)/Rare Disease

Every week, my son’s principal sends a voicemail to parents highlighting the week’s news and activities. At the end of the message, she signs off with a reminder to “Be…

Continue Reading A Special Day for Raising Hunter Syndrome Awareness
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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