Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
MASH Rec CARD (13)
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

IIH

  1. Home>
  2. IIH
IIH Rates are Significantly Higher for Black and Hispanic Women
geralt / Pixabay

IIH Rates are Significantly Higher for Black and Hispanic Women

  • Post author:Jessica Lynn
  • Post published:June 16, 2021
  • Post category:Idiopathic intracranial hypertension

Some conditions or diseases are more prevalent in certain groups. In the case of idiopathic intracranial hypertension (IIH), new research suggests that it is much more common in Black or…

Continue Reading IIH Rates are Significantly Higher for Black and Hispanic Women
Study of the Week: Idiopathic Intracranial Hypertension Cases Are on The Rise
source: pixabay.com

Study of the Week: Idiopathic Intracranial Hypertension Cases Are on The Rise

  • Post author:James Moore
  • Post published:February 22, 2021
  • Post category:Idiopathic intracranial hypertension

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: Idiopathic Intracranial Hypertension Cases Are on The Rise
Doctors Explore Why This Brain Pressure Disorder Increased Six-Fold

Doctors Explore Why This Brain Pressure Disorder Increased Six-Fold

  • Post author:Sunniva Bean
  • Post published:February 16, 2021
  • Post category:Idiopathic intracranial hypertension

As shared in a press release by the American Academy of Neurology; the medical community had taken note of the rare brain pressure disorder idiopathic intracranial hypertension (IIH) when they…

Continue Reading Doctors Explore Why This Brain Pressure Disorder Increased Six-Fold
Choosing Fearless: Living with Idiopathic Intracranial Hypertension

Choosing Fearless: Living with Idiopathic Intracranial Hypertension

  • Post author:Jennifer Peterson
  • Post published:January 27, 2021
  • Post category:Idiopathic intracranial hypertension

Written by Jennifer Peterson As a young adult, this journey was not something I ever imagined taking, and it certainly was not for the faint of heart. Being diagnosed with…

Continue Reading Choosing Fearless: Living with Idiopathic Intracranial Hypertension
Woman with Intracranial Hypertension is Left Bedridden and in Pain for Years
VSRao / Pixabay

Woman with Intracranial Hypertension is Left Bedridden and in Pain for Years

  • Post author:James Moore
  • Post published:November 8, 2019
  • Post category:Intracranial Hypertension

According to a story from Mirror Online, 29 year old Jessica Walton of Cambridgeshire, England, was first diagnosed with the rare disease intracranial hypertension four years ago. Since then, her…

Continue Reading Woman with Intracranial Hypertension is Left Bedridden and in Pain for Years
Nursing Student Narrowly Avoids Blindness Onset By Idiopathic Intracranial Hypertension
Source: Pixabay

Nursing Student Narrowly Avoids Blindness Onset By Idiopathic Intracranial Hypertension

  • Post author:Meagan Fulps
  • Post published:January 12, 2018
  • Post category:Intracranial Hypertension

Nursing student Jess Boxley could be blind if she didn't see a doctor for her extreme headaches and neck pain, reported The Huffington Post UK. Jess, at a young 22-years-old,…

Continue Reading Nursing Student Narrowly Avoids Blindness Onset By Idiopathic Intracranial Hypertension
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info