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IIWK15

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Meet Bonnie: The Red Sox Fan Worthy of a Different HoF

Meet Bonnie: The Red Sox Fan Worthy of a Different HoF

  • Post author:Patient Worthy Contributor
  • Post published:September 30, 2015
  • Post category:Rare Disease

My name is Bonnie and I’ve been fighting for my life for eighteen years, but I have been fighting an invisible fight for the past twelve. This is #myinvisiblefight story.…

Continue Reading Meet Bonnie: The Red Sox Fan Worthy of a Different HoF
Meet Shelly: She Has More Strength Than Most People Ever Need.

Meet Shelly: She Has More Strength Than Most People Ever Need.

  • Post author:Patient Worthy Contributor
  • Post published:September 30, 2015
  • Post category:Rare Disease

My name is Shelly. I am a Christian, a wife, a mom, and a writer- a published author in fact, and that is how the world knows me. But the…

Continue Reading Meet Shelly: She Has More Strength Than Most People Ever Need.
Meet Maria: Behind Closed Doors

Meet Maria: Behind Closed Doors

  • Post author:Patient Worthy Contributor
  • Post published:September 29, 2015
  • Post category:Complex Regional Pain Syndrome/Rare Disease

I'm Maria; I'm a wife and mother, fashionista and shoe enthusiast.  Not all of my days are bad, but no one knows about the really bad days because I hide…

Continue Reading Meet Maria: Behind Closed Doors
Meet Melissa: The Selfless Baker

Meet Melissa: The Selfless Baker

  • Post author:Patient Worthy Contributor
  • Post published:September 29, 2015
  • Post category:Rare Disease

Meet Melissa, a wife, mother and advocate. Patient Worthy interviewed Melissa about her #InvisibleIllness - gastroparesis. Almost two years ago, un-welcomed and without warning, gastroparesis enetered Melissa's life. “I was fine one day…

Continue Reading Meet Melissa: The Selfless Baker
Meet Oakley: A Little Boy with a Big Fight

Meet Oakley: A Little Boy with a Big Fight

  • Post author:Patient Worthy Contributor
  • Post published:September 29, 2015
  • Post category:Rare Disease

This is my son Oakley, a five year old with  an adorable smile, who loves the Ninja Turtles, and you'd never guess what we've been through. My little man has…

Continue Reading Meet Oakley: A Little Boy with a Big Fight
Meme Monday: The Invisible Illness Awareness Edition

Meme Monday: The Invisible Illness Awareness Edition

  • Post author:Patient Worthy Contributor
  • Post published:September 28, 2015
  • Post category:Rare Disease

It's #IIWK15 (Invisible Illness Awareness Week) and it's impossible for us to be more pumped about it! If you have no idea what #IIWK15 is all about, check out blogger…

Continue Reading Meme Monday: The Invisible Illness Awareness Edition
Meet Lisa Copen: The Voice of Invisible Illness Awareness

Meet Lisa Copen: The Voice of Invisible Illness Awareness

  • Post author:Patient Worthy Contributor
  • Post published:September 28, 2015
  • Post category:Rare Disease

My name is Lisa and I am living with rheumatoid arthritis (RA) and fibromyalgia. #myinvisiblefight is ongoing, but I have faith, family, and friends.  This is my story. I was just…

Continue Reading Meet Lisa Copen: The Voice of Invisible Illness Awareness
Invisible Illness Awareness Week 2015 Starts Today!

Invisible Illness Awareness Week 2015 Starts Today!

  • Post author:Patient Worthy Contributor
  • Post published:September 28, 2015
  • Post category:Rare Disease

This introduction to Invisible Illness Awareness Week or as we like to call it #IIWK15 was written for publication on Patient Worthy by Lisa Copen, the founder and director of II…

Continue Reading Invisible Illness Awareness Week 2015 Starts Today!
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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