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Happiness and Kindness on Independence Day

Happiness and Kindness on Independence Day

  • Post author:Kristen Lord
  • Post published:July 5, 2016
  • Post category:Rare Disease

We are lucky enough to live in a country where it is our right to pursue our happiness. Lately though, everyone seems so unhappy and easily offended. It seems like…

Continue Reading Happiness and Kindness on Independence Day
Happy Independence Day Week! Being Rare in America

Happy Independence Day Week! Being Rare in America

  • Post author:Kristen Lord
  • Post published:July 4, 2016
  • Post category:Rare Disease

There are 30 million people in America with a rare disease. That is about 1 in 10, or 10%, of the population. Keep on fighting the good fight, every post…

Continue Reading Happy Independence Day Week! Being Rare in America
Rare is Precious, Unique, and Valuable

Rare is Precious, Unique, and Valuable

  • Post author:Kristen Lord
  • Post published:July 4, 2016
  • Post category:Rare Disease

If you think about the definition of rare, you realize just how accurately it describes people with rare diseases. You are one in a million and you are precious to…

Continue Reading Rare is Precious, Unique, and Valuable
How to Maintain Independence with Chronic Illness
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How to Maintain Independence with Chronic Illness

  • Post author:Patient Worthy Contributor
  • Post published:July 4, 2016
  • Post category:Dysautonomia/Lyme Disease/POTS/Rare Disease

Happy Independence Day! For those of you in the United States, usually the Fourth of July weekend is a filled with fun celebrations and family. But what about those of…

Continue Reading How to Maintain Independence with Chronic Illness
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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