ICYMI: She Was Told She Was Depressed. A Decade Later, She Found Out She Had Lyme Disease
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ICYMI: She Was Told She Was Depressed. A Decade Later, She Found Out She Had Lyme Disease

A rare disease patient's medical odyssey often begins with a search. Rhisa Perera wrote a narrative in lymedisease.org about her long journey navigating the medical world to find answers and…

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Chronic Lyme Disease Patient Provides Advice for People Experiencing Long-Lasting Effects of COVID-19
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Chronic Lyme Disease Patient Provides Advice for People Experiencing Long-Lasting Effects of COVID-19

Ross Douthat, a writer for the New York Times, was first diagnosed with Lyme disease and a Bartonella infection in 2015 from a deer tick bite. The effects have lingered…

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Moebius Syndrome Patient Explains How to Emote While Wearing a Mask
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Moebius Syndrome Patient Explains How to Emote While Wearing a Mask

Moebius Syndrome Moebius syndrome is a rare condition that causes an inability to move the eyes laterally and facial paralysis. A similar type of paralysis can also occur as a…

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The Importance of Diagnoses: Living with Lyme Disease and Hashimoto’s Disease
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The Importance of Diagnoses: Living with Lyme Disease and Hashimoto’s Disease

Obtaining a diagnosis for a rare disease tends to be very difficult. Doctors do not immediately expect that rare conditions are causing one's symptoms; they blame more common conditions first.…

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Ethnobotanical Medicine is Proven to be an Effective Treatment for Lyme Disease
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Ethnobotanical Medicine is Proven to be an Effective Treatment for Lyme Disease

Lyme disease is the most common vector-borne disease, and it has become more prominent due to climate change and urban developments spreading further into wooded areas. Treatment is typically effective…

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Justin Bieber Announces he has Lyme Disease after fans Harshly Critique his Appearance
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Justin Bieber Announces he has Lyme Disease after fans Harshly Critique his Appearance

  This past week Justin Bieber publicized some surprising news amidst some fans commenting that he looked like a “drug addict.” Bieber, 25, recently posted on his Instagram that he…

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Chronic Kidney Disease is Just One of Many Diseases That Will Become More Prevalent Because of Climate Change
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Chronic Kidney Disease is Just One of Many Diseases That Will Become More Prevalent Because of Climate Change

According to a story from EurekAlert!, farm workers from across the world are experiencing increased rates of chronic kidney disease. The precise reason for the increased rates are unknown, but…

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Patient With Long Term Untreated Lyme Disease is Raising Money for Specialty Treatment in the US
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Patient With Long Term Untreated Lyme Disease is Raising Money for Specialty Treatment in the US

According to a story from Express Digest, 22 year old Steph Todd first started experiencing symptoms of Lyme disease in 2015, when she presented with flu-like symptoms and a circular…

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Think You Have Lyme Disease? Make Sure You Don’t Have One of These Other Diseases First
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Think You Have Lyme Disease? Make Sure You Don’t Have One of These Other Diseases First

According to a story from the Madison Area Lyme Support Group, one of the most difficult challenges about Lyme disease is getting a confirmed diagnosis. Testing for Lyme disease is…

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Finding Unbiased, Credible Information About Your Rare Disease Can Be Difficult, This Compilation of Resources May Help

When you or your child is first diagnosed with a rare disease it can be so difficult to know where to turn. You want to learn everything about the condition,…

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