According to a recent article, 17-year-old Diego Ramirez was able to compete in the Flying Pig Marathon despite his Duchenne muscular dystrophy diagnosis. Duchenne Muscular Dystrophy (DMD) Duchenne muscular dystrophy…
Written by Jennifer Peterson As a young adult, this journey was not something I ever imagined taking, and it certainly was not for the faint of heart. Being diagnosed with…
I want to be Isaiah Acosta when I grow up. The 17 year-old from Phoenix, Arizona was born without a jaw, due to the very rare disease situs inversus, which…
Veronika was diagnosed with gastroparesis as a young girl. The cause was unknown. Her symptoms were demoralizing. Veronika found ways to stay positive and combat her illness. Read more below,…
No hace mucho tiempo, empecé a seguir una prensa sobre una adorable joven llamada, Maddie, de Lawndale, Carolina del Norte, que vive con la enfermedad de Behçet, y estoy encantada…
A support system, a family member, a significant other, a friend, can mean so much and knowing that there others out there who are going through the same thing, however…
There's no doubt that living with a chronic illness is difficult. There may be certain things you can't do and activities you can enjoy. Even so, if you let that…
Unfortunately, there will always be bad days. The thing is, you are allowed to feel miserable sometimes. Everyone does. The important thing is that you pick yourself back up, sometimes…
When the going gets tough, think about how good it will feel once your past the rough patch. You should be proud of yourself and your resilience and how far…
The future can be overwhelming, and by "the future" i mean sometimes even just next week. Take things day by day and give yourself time to recuperate and refresh before…
Take a deep breath and know that even if other can't see it, your day, living with chronic illness, has been a battle. Every part of today has been a…
Not long ago, I started following some press about an adorable tween named, Maddie, from Lawndale, NC, who is living with Behçet’s disease, and I’m just smitten! At the ripe…
This Michelle Tanner look-alike (she even knows the signature "you got it, dude!") is one of the brave faces of GLUT1 DS. RareConnect.org describes Gracie as a bubbly, strong willed three…
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