IPEX – Patient Worthy

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Mom Signed Up Thousands of Stem Cell Donors in Support of Son with IPEX

Post author:Rose Duesterwald
Post published:November 24, 2023
Post category:Immune dysregulation, polyendocrinopathy, enteropathy, X-linked (IPEX) syndrome

Every three to four minutes, someone in the U.S. is diagnosed with a blood disease such as lymphoma, leukemia, or sickle cell anemia. As reported in the Pittsburgh Post-Gazette,…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

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