KIF1A related neurological disorder

Rare Community Profiles: Superhero Liam Battles KAND with the Help of Shriners Children’s

Post author:Jessica Lynn
Post published:July 16, 2024
Post category:KIF1A Mutation

Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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