legislative advocates – Patient Worthy

source: pixabay.com

RDLA Webinar Provides Vital Updates on Legislation Relevant to the Rare Disease Community

Post author:James Moore
Post published:October 22, 2020
Post category:Diffuse Intrinsic Pontine Glioma Familial Chylomicronemia Syndrome

On October 15th, 2020, the Rare Disease Legislative Advocates (RDLA) held a webinar discussing some of the latest news regarding ongoing legislation that is most relevant to the rare disease…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Keep Up to Date

Learn More